12 - AVEC SOLINE
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L’association Avec Soline Contre la Paralysie Cérébrale a été fondée en février 2023 par les parents de Soline quelques mois après sa naissance. Soline a hélas été victime d’un AVC périnatal sans qu’il soit possible de dater précisément le moment de l’accident. Cet AVC a détruit la majeure partie des tissus de son hémisphère droit et d’une partie plus centrale du cerveau. Ces dommages ont causé une paralysie cérébrale, elle-même engendrant une hémiparésie sur les membres du côté gauche de Soline. Soline souffre également d’une forme rare d’épilepsie qui impacte grandement son développement.
Dans leur combat pour accompagner Soline au quotidien, ses parents ont été confrontés à de nombreuses difficultés mais aussi eu la chance d’être aidés par des personnes formidables. En créant cette association, ils ont eux aussi voulu venir en aide à des familles et des enfants touchés par les conséquences d’un AVC pédiatrique et d’une paralysie cérébrale.
Le projet associatif repose sur 4 piliers:
-Sensibiliser autour des enjeux des paralysies cérébrales.
-Créer du contenu pédagogique et informatif à destination des enfants et des familles.
-Récolter des fonds pour financer des thérapies et des chirurgies non prises en charge par la sécurité sociale.
-Organiser localement des rencontres et activités entre enfants porteurs de handicap(s) afin qu’ils puissent aussi interagir et prendre exemple sur des enfants partageant des difficultés similaires.
Objectif de dons de l'équipe
Les donateurs de l'équipe
Chargement...
Voir plus
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